Tuesday, June 16, 2009

Thursday is for Testing: Penny Update

I wanted to give everyone a Penny update. Last week we saw the GI and nutritionist again. Penny may be eating 16-20 ounces in a bottle a day but she won't eat any finger food except crackers and puffs (girl hasn't had a vegetable in about a month) and won't eat ANY spoon food. Anyway, they confirmed that she hasn't gained any weight and still isn't getting enough calories.

So next Thursday and Friday (not this week) she will be at MGH for various tests - endoscopy, delayed gastric emptying. We'll meet with neurologists and geneticists. I don't think allergists are on the agenda. I get the impression that the GI thinks we won't find much and that her adenoids will be removed.

One hurdle at a time. I do feel like all of this is a drain on the healthcare system. We are "House" style doing tests to rule out things but I'm hesitant to remove adenoids and/or put in a feeding tube if we can try other medicinal routes.

I assumed that I would be the one with Penny overnight at the hospital but Husband assumes it will be him. Really re-enforces our team parenting approach. He's been hit with the short stick on that lately since I've been working like crazy and now gone visiting my sister and new niece.

10 comments:

T. said...

Oh, I hope you'll finally get some answers! Will be thinking of you on Thursday.

Goddess in Progress said...

Good luck, good luck.

almostima said...

Thinking of you guys! HUG

jungletwins said...

Oh gosh, this cannot be easy. Sending good vibes to your family and hoping the feeding issues can be resolved as quickly and as painlessly as possible. Thank goodness Penny has such smart, loving parents to look out for her.

jerseygirl77 said...

I will be around on Thursday, so call me if you need anything. I'll be thinking of you!

Nancy said...

Well, if it's truly House style, at the end of the hour, you'll have your answer! ;)

Seriously - good luck...been thinking of you guys!!

twin momma said...

I'll be keeping my fingers crossed for you and Penny!

Rebecca said...

Good luck this week! We missed seeing you last night.

JRowe said...

The duchess sends her love and best wishes! XO JR

Susan said...

Hope little Penny gets answers today. Cyper thinking of you today.