Monday, November 23, 2009

The Esqs Catch a Break

I just got off the phone with Penny's pulminologist. He reviewed her sleep study and she is much improved. She had only 5 apnea events per hour (down from 28.5x an hour) and her O2 sats ran in the low 90s most of the night but only dipped into 86% once. Apparently Penny is diagnosed with some condition that means her O2 runs low all the time while sleeping - and there is no known reason for it. But all of that said the doctor feels comfortable that she can go off the oxygen.

Once a week we are going to test her baseline but with the understanding that her home monitor cannot tell us the "quality" of the data (they can in the fancy lab) - e.g., sometimes she sets if off by moving around. We are also going to keep the O2 tank and supplies for when she has a cold or any other indication that her breathing is not 100%. I'm also going to keep a close eye on her energy levels (one immediate benefit we saw when she first when on O2).

For the last five months we have been putting the nasal cannula over her head, leaving Duoderms on her pretty face, listening to her (rightfully) complain about the arm restraints she can't pull off in the morning, the beeping (oh, God, the beeping!) and it seems unreal that this is becoming part of Penny's medical HISTORY.

It's making me a little weepy.

P.S. Husband said that Penny kept wriggling her toe where we usually put the monitor probe...looked up at him...and smiled. Damn, weepy again.

15 comments:

Goddess in Progress said...

That is simply spectacular news. I can only imagine the weight off your shoulders! Hooray!

A. said...

I'm weepy, too. Yay, Penny! Yay, everyone!! Finally!!!!!!

LauraC said...

YAY YAY YAY!!
So thrilled for you!!!!

Just Kristen said...

What wonderful news! So cute that she noticed there was no monitor and was pleased!
:)

What A Card said...

Yay, Penny! Yay all of you! Great news :)

jerseygirl77 said...

Hooray for Penny!!!!!

Stacey said...

What a relief! But how annoying that there is "no known cause." Guess medicine still has a long way to go!

T. said...

This makes me sooo happy!!! Hooray Penny!

Julia said...

I am weepy myself here. So happy she is over this! Cannot wait to see her pictures without the duoderm patch.

Also, good luck with those possible allergies. We are going through that here - no dairy, beef, soy, wheat, oats. We have thankfully introduced eggs successfully, as well as citrus. The upside is that I breastfeed so we can skip the nasty (and costly!) Neocate thing, but the food expenses rise as I cannot eat any industrialized food.

Amy said...

Wonderful news for all of you!

ElizabethEK said...

Awesome!

Nancy said...

WOOT!! That just rocks. :) Got me a little weepy too...and soooo cute that she was wiggling her toes. Kids are amazing, aren't they? :)

Lisa said...

HOORAY!! I can't wait to see pictures of Penny without her duoderms. Congratulations!

Monica Marino said...

That is wonderful! Happy Thanksgiving!

almostima said...

Phaclempt ... And happy day!